Dear Members of The International Bureau of Epilepsy and The International League Against Epilepsy,Hi,
I hope you are all well.I know you all are really busy and I want to thank you for taking the time to read my letter :)My name is Cassidy Megan and I wanted to write to you today to talk to you about an epilepsy awareness day on March 26th.I would like to tell you a bit about myself, I am 15 years old and the Founder of Purple Day which is celebrated on March 26th every year, I founded this day when I was 8.
I would like you to know why I started this.
When I found out I had epilepsy I was 7 years old and I was so scared, embarrassed and I felt so alone. I really thought I was the only kid with epilepsy. I also thought that I was the only one with epilepsy who felt this way. I didn’t want anyone to know I had epilepsy and I wouldn’t let my parents or anyone talk about me having epilepsy.When I was 8 yrs old my mom had the Epilepsy Association of Nova Scotia come to my school to do a presentation to my class to help them learn about epilepsy. I seen how my friends were acting and really wanting to learn more. When they asked the presenter if she knew anyone with epilepsy, she told them yes. That is when I told my mom and teacher we could tell them I had epilepsy too. I was scared but I seen how nice they were all being and wanting to learn more.Then the next year I was sitting on the couch with my mom one day and I asked her why there wasn’t just one day for epilepsy like there was for cancer or St.Patricks day, a day where people could learn more about epilepsy and so that people who have epilepsy would know that they weren’t alone.My mom explained to me that there were different months in different parts of the world that were for epilepsy awareness. I told her I wanted to have just ONE day a year where we could have more awareness for epilepsy, a day that people could come together and help each other. I wanted to have a day where people with epilepsy would know that they weren’t alone and that they didn’t have to be afraid, embarrassed or felt like I did. I also wanted people who didn’t have epilepsy to learn more about it, to know that there are different types of seizure and how to help if they see someone having a seizure. I also wanted to let everyone know that even though people have epilepsy that they are the same as everyone else and that we aren’t different. That we have epilepsy just like you have blue or brown eyes.My mom said ok and asked me what I wanted to do. I told I wanted to get everyone to wear something purple and to tell people why, and to talk about epilepsy. She did explain to me that lavender was a color for epilepsy because in some parts of the world it represents the feeling of being alone. ,I told her that lavender is just a shade of purple and by calling it Purple Day people could wear what ever shade of purple they wanted. I told her I wanted all my family and school and people around the WHOLE world to do this and my mom said “oh well lets just stick with our community for now”. :D But I never gave up and I never will, I wanted to make sure that people all over the world didn’t feel like I did and that they knew that they weren’t alone.<3The reason it is on March 26th is that when we spoke to the principal at my school he said that the day that worked best for him and the school to do this and have The Epilepsy Association of Nova Scotia come down would be March 26th. Where I wanted to do this every year I wanted to have that day, March 26th as a world epilepsy awareness day forever because it would be easier for people to remember a date.Since I started this I have seen March 26th, Purple Day grow bigger and bigger every year.
I have seen March 26th become a day that is celebrated by people with epilepsy and people with out epilepsy all over the world. It has become a day where people learn more about epilepsy. A day were people with epilepsy don’t feel alone or afraid. It has become a day that all of us, from all over the world can call our own. A day for all of us to be proud and stand together.There are countries and people celebrating epilepsy and epilepsy awareness on March 26th every year on every continent in the world, and that’s including AntarcticaI see people from all over the world no matter how old they are, what race or religion they or where they are from, coming together as one to stand together and help each other grow braver in themselves and educating the world about epilepsy.I see how much March 26th has grown and is still growing to bring the world together on this one day, to be brave, strong, and to be aware.I hear stories from people who say that this has helped them speak out, be brave and feel a part of something for them. They feel like they have a day for them and epilepsy.I also hear stories of how this day and all the awareness with it has helped people who do and who don’t have epilepsy learn more about epilepsy.Do you know how it has grown so big and so important? It is not because of just me but because of all the hard work and support from all the business, hospitals, epilepsy organizations and people from around the whole world.On March 26th I see the world come together as one to support each other and to educate people about epilepsy.The other reason I wanted to write to you is because I have heard a lot of things good things about you and your organizations and all of the great things that you all do, this is why I would love to work with you all to continue to make March 26th a world epilepsy day.I understand that some cultures can’t use the term Purple Day because of their beliefs and or cultures and I was thinking that it may not matter what they or we want to call it but March 26th is already celebrated and recognized around the whole world by so many hospitals, businesses and people. March 26th has given thousands of people with epilepsy the strength, and the pride to be brave and stand up and speak about epilepsy, it has brought so much awareness to epilepsy and has given everyone a day we all can call our own, that is what I wanted when I started this day. That is why it is so important.If you would like to learn more and see just how important Purple Day, March 26th is I would love for you to visit the website atwww.purpleday.org. On our website you can see just how many countries celebrate and participate on March 26th and what people are doing around the whole world.
I hope you like the website :)I would like to ask you to please consider helping us all and to please make March 26th International Epilepsy DayThank you for reading my letter.Love,Cassidy Megan <3